Sodium Plan B 1/31
A new plan of attack today. We started giving Kathryn only water half sodium and half regular water every hour and a half. Hopefully it will start reducing the sodium. It was even higher today once we finally got the report (175). Yes, this is a dangerous level for seizers. So, now there is another plan on top of this plan. We will receive an IV pump to pump water in over night. Could have waited for morning but would that really be in the best interest of Kathryn? I don’t think so. I had to promise to monitor the pump over night. Well, that’s a no brainer.
We had a water come out of the mouth and nose today. Richard was Johnny on the spot and stopped it. It worked out ok. Grandma was right there to help.
Kathryn had a nice hair wash this morning by Mona. Richard than brushed her hair they way she would like it. A little later he read some more Harry Potter. Mom read some more Unlikely friendship stories.
Alli, Kathryn’s friend who worked on the WWU Relay for Life with her came all the way down from Everett to visit. She brought Kathryn a soft Fluffy pink dog and a very soft hot pink blanket. Lots of soft and pink. Last year Kathryn and Alli planned all of the activities for the relay and they had a different activity every hour all night long.
Two friends from Camp Goodtimes came down to visit too. Watermelon and Putt Putt are their names. They brought Valentine window clings and dinner. Yum! Yum!
Richard was sitting with Kathryn today holding her hand. She would give a squeeze each time he would try to pull away so he just stayed there for a while.
Matt came by and we took some pictures of him and Kathryn with her wearing the beautiful necklace he gave her.
Our IV pump arrived around 7:30 pm and a bunch of other stuff to go with it that we don’t need or want. So I signed the paper work stated I didn’t want half of the stuff. A back pack for Kathryn to carry around her IV pump in. Really! A bunch of heprin flushes and we just gave away 300 of those that the last place sent. I wasn’t on top if it enough to make them take it back. The list is longer than that. If you have insurance or even if you don’t watch out for medical supply places sending way more than you need. Stuff we can’t even use. I will be returning all of the stuff that came tonight but the bags of water to be pumped. Returning the pump too. We have one much better than the one they went. Ours will detect air in the line and the one they sent won’t even do that.
Well I hope this flushing the body with water gets rid of the sodium problem. At least the tummy is a bit better. Not so hard and getting things moving. We even heard sounds with the stethoscope.
Don’t know what the nurse will get here to set up the pump but it is 9:00 pm. Hopefully he or she will be here soon. She was a fabulous person. I think most of the time was spent just in conversation. Finally to be 11:00pm
Love to All