Late afternoon Kathryn had asked to do spontaneous breathing and she was doing well. She would forget to breath when she typed but with Mom reminding her the horns never sounded. Then some friends came by and She had to show them how well she could do on her own without the machine. She did great. We said she was showing off her breathing skills. She is trying to talk but can’t with the cuff up on this trach. She wants to talk so badly. Dad heard her and I can hear her but it is hard to make out. It really isn’t the situation where she should even be trying.
Last night the blood pressure was a huge issue. She is now on BP meds every couple of hours. They also gave her Lasik’s to take the extra fluid off of her. They did get the headache calmed too.
We watched the movie Wall-E. Kathryn was buried in stuffed animals. You could hardy see her. Great little movie to remind us to take care of our beautiful earth and to get out there and exercise.
This morning Kathryn finally rested well. She was fidgety last night but fell sound asleep around 6:15 am and is just waking up 11:30. They had done their best to keep it quiet and still do the jobs they need to do.
Woke up all smiles and sunshine. It’s amazing what a few good hours of sleep will do. Doing breathing exercises, did sit on the side of the bed with OT and she just did PT. It will be a hard working day for Kathryn. Maybe she will sleep in the night instead of the morning with all of this work today.
Love to all