RAG DOLL 1-23/1-24
The 23rd started off ok with Kathryn requesting a shower. Richard and Mom got her all together for one. It was a lot of work as she could not stay awake. Our Christmas the day before may have worn her out. She was floppy like a rag doll. The shower was worth it because Kathryn felt so good after.
She chose to stay in her room and not go down stairs. Around 2:50 she had her food coming out of her nose and mouth. Thank goodness Dad was right there and turned her on her side and cleared her mouth. The nurse from home health was just leaving and we called her back. It was nice to have someone right there who was in the medical field. We discussed the food with the nurse and with the doctor later and decided the recommended amount is just way too much for our little one.
After this food episode Kathryn was in bad shape. She had already been extremely sleepy and now not responding very well to any of our questions. Through the night we watched her and watched as her oxygen level fell to the 70’s . We saw in the hospital what an oxygen level in the 60’s will do and it is not pretty. We were scared and kept rousing Kathryn to breath. We listened to music most of the night. We all prayed for Kathryn too. We made it through the night.
Today (Tuesday 1/24) Kathryn started off pretty sleepy still floppy like a rag doll. But as the day went on she came out of it little by little through the day. Richard and Scott have been reading to her all day. Her room is now our gathering place. Thanks goodness she has a good size room. Hanging out together has been good for all of us. Kathryn has even smiled and laughed a bit today. Yesterday there was very little. Her oxygen has dipped into the 80’s but has mostly stayed in the 90’s.
Hopefully tonight will not be as scary as the last. Continue to pray for Kathryn. This is in God’s hands and his alone. I had a vision of Kathryn and myself (Mom) writing books about our experiences. Of course she was doing all of the illustrations. One of the books was titled, “When man gave up on me God healed me.” I would love to write this book.
Pray for the day that I can sit with my beautiful daughter and write books that we share with children and families in similar situations. Pray that we will work together to give hope and encourage faith in others through our journey.
We are going to watch or at least listen to the movie “ELF”. I think Kathryn knows the entire movie word for word.