High Sodium 1/30
So we just can’t get this sodium game right. Kathryn’s sodium had gone up last week and we stopped giving her the sodium tablet that costs somewhere around $400 a piece. But instead of her sodium going down over the weekend like we all thought it would it went up. So now we are in the same situation as if it were too low. If it is too high it can cause a seizer and we are nearing that number. If we bring it down too quickly this can cause a seizer. Sodium is a very touchy deal. Make sure your sodium is in check! We are changing the water that she gets to regular water. She was only getting .9% sodium water because her sodium was too low now we are doing half and half to hopefully bring it down slowly.
Now something good. I didn’t finish talking about Kathryn’s visit with Matt last night. We told him to just tell her about his day and what he has been doing and he did this. This was while he sat next to her bed and held her hand. We let him lay next to her in bed and they were so cute together. He told her a story. It was great! All about a Panda and a Unicorn. Of course two of Kathryn’s favorites. He said Kathryn usually interjects to help him with the stories so this one wasn’t as good. My heart was breaking as I watched the two of them together and saw how broken hearted Matt was. Kathryn clearly enjoyed her visit with Matt. She was definitely listening to his story. I forgot to say that she reached up to touch the blanket when Matt told her it was so soft.
Her tummy was finally emptied last night too. It felt soft and flat like it should when she went to bed. She slept great!
By morning her tummy was hard again. We are hoping the medicine will do its thing again so her tummy doesn’t hurt. They day went well and Richard read more Harry Potter to her. Then we did the 3:00 food and meds and as Richard was giving her the water it started coming out her nose and mouth. An over flow and she had plenty of room. We cleaned her all up and the 6:00 one went fine but we gave a lot less water. And the 9:00 went fine too.
Robyn (Carol’s friend) came by to and brought some beautiful pink roses. I have never seen Roses so perfect. Auntie Carol and Uncle Hugh came by too. Auntie Carol and Grandma Ann worked together putting away Christmas and Dad got all of the boxes up in the attic. That was a big chore.
Matt came by in the evening and brought us a wonderful dinner made by his mother. It was delicious! Matt got a nice response from Kathryn. She opened her eyes and listened to him. He said something about doing thumb wrestling and she responding by moving her thumb. She must be a little competitive. She was trying to play and win. She was more awake I think this evening because Matt came by again. He’ll just have to be a regular. Scott just said, “He’s good for her.” I agree.
She is all tucked in bed and looks very comfortable.
Good Night and Sleep Tight
God Bless You All