Kathryn had a headache most of the day. Her wonderful nurse worked and worked at trying to figure out what would make it go away. Finally a fix. So this means we didn’t get to do PT but of course the “Panda” girl had done some on her own in the morning and again once she felt better she did a bunch. Kathryn is very strong. Don’t let her size fool you.
She had her feeding tube taken out of her nose today. It is nice to see all of her face. She has the cutest little nose. They will put in a new feeding tube tomorrow that will come out of her tummy. Don’t know what time. This should help keep the headache away. It is believed to have been caused by the tube in the nose. It will build up pressure in the sinuses.
Her counts… We are again working on the sodium. It was down to 124 and now up to 127 and checking it every 4 hours. Her platelets had gone up but have now gone down to 51,000 and this will be checked tomorrow morning before the procedure. May have to do a platelet infusion in the morning and if so they are ready so there will be no wait time. Platelets take just a few minutes 20-30 to infuse a bag. My guess is that we will be infusing in the morning.
We ended the day with a movie “The Notebook”. It is such a touching movie. True love, something we should all experience.
Thank you again for the comments, prayers and good thoughts. We love you all very much.