Kathryn spent most of the morning resting. Rest is good. In the afternoon she got up in the wheel chair again. We were able to find a nice big window where she could look out and also feel the sun shining upon her face.
In the evening we watched Chocolat with Johnny Depp. Kathyrn’s favorite.
Being 20 has posed some interesting issues. We have been told adults don’t go home on vents. We have been told they go to a nursing facility or the special facility in Tukwila where we would learn about vents. This would take at least a week or two and be far away. If you are a child they go home on vents without leaving the Tacoma. Parents are trained on the vents in the hospital for 3 days or so and then sent home with nursing care. Insurance issues make everything take longer too. To get a vent to be trained on requires insurance authorization which could take a while. Then the training. Then finally home. It gets rather confusing. Our wonderful doctor and many others are working hard and I’m sure overtime to get this all done so we can get Kathryn home. Why a ventilator? It seems when Kathryn sleeps she forgets to breath. She will have a long pause between breaths and this sounds the alarm on the vent.
Last night a healer stopped by to pray with us and give Kathryn God’s message of his love and healing. He told Kathryn he only comes to people if God has told him to. He also told Kathryn that her job is not done here. She will get well and she will paint. God will give her visions of what to paint. Going through this is necessary to have testimony. People will be so amazed about her recovery that there can be no scientific explanation and we will be the ones testifying to God’s work. Kathryn smiled and glowed while he spoke with her eyes wide open. He told each of us what we had been thinking and what God had to say about our thoughts. I know that none of us had shared any of those thoughts with anyone. How could he know without being told by God? This was a wonderful experience. It renewed faith and hope. He reminded me that this is not a miracle but a healing. The difference is a miracle happens right now and a healing takes time.
Kathryn slept well and woke up this morning 1/12/2012 with a smile on her face and her eyes both wide open. This was the first night she had a blood pressure that wasn’t high all night. It actually fell within the normal range for several hours. She also went to bed without a headache and didn’t complain of a headache during the night.
She had PT this morning but had little time so she just sat on the edge of the bed for a while. No Huge headache like yesterday morning or throughout the day. Her nurse was the same one today as yesterday and she said she noticed a big difference in Kathryn from yesterday to today. This difference was in the positive direction.
Sodium is still low 121. It has been 121 for a while but I just got the report that it is now119 (1:50 pm). They are changing some things to work on this now. More 3% sodium and a new sodium drug. This is very scary since Kathryn had her seizer at 119. The last test that just came in had gone up to 124, This means good.
Scott brought in Kathryn’s cat, Klyde. He stayed in his carrier while Kathryn put her hand in the carrier and just touched him. The two of them just took a little nap together. It was very sweet. They were both happy to see each other.
The doctor at the ICU unit is going to have Kathryn try a setting on the vent tonight that is similar to what a machine for someone with sleep apnia would use. If this works then we would not need a ventilator and life would be so much easier. It is now a wait and see….
Getting an infusion of red blood cells tonight. Just got the sodium level 124. Yeah! It is going in the right direction. Makes me feel better. I would love to see the 30’s once again.
Movie tonight is “Benny and Joon”…