Kathryn had very little of her sedation drugs today. For an hour and a half they were completely shut off. She has tolerated it very well. She has been up all day listening to doctors and writing us lots of notes. She told Dad to bring her phone last night. Today she requested her movies and watched her favorite one today (ELF). She also asked about what day it is and the time. She is still the smart one we all know and love.
It is 6 pm and we are waiting to hear from the doctor who would be doing the tracheotomy. Still has not stopped by. It is difficult to wait but he will be here and we will let you know when the procedure will happen. That was a question of Kathryn’s today. She wanted to know if it was today. She just wants to get it over and get home ASAP.
I must say she is the favorite patient on the floor. They all love her and treat her so well. Her nurses, doctor and other staff from the Mary Bridge clinic have been over to check on her too. They have known Kathryn for a long time. I believe Kathryn is the one who got Dr. Irwin to go to Camp Goodtimes this past summer.
So many of you have said she has inspired you and you are so glad you have met her. She is an inspiration. As she fights this she continues to stay strong. She is amazing. She holds it together better than any of us. Believe me she is fighting and fighting with all of her might.
Thank you for all of your loving comments. We appreciate all of them.
Just met Dr. Hamill (6:30pm) Yeah! Kathryn will have the tracheotomy tomorrow. It is scheduled for 11 am but he also told us that could be 1 pm hospital time. Kathryn will have her mouth and face back. No she won’t be eating real food yet or be able to talk right away but in a few days she will be able to talk and maybe eat real food too.
This is all great news. The sooner this is done the sooner we can take Kathryn home. By the way, Our Christmas tree is actually growing. It is taking in a quart of water a day and the branches are growing longer and sticking out. I have never heard of such a thing. Must be from all the good vibes it picked up at her Christmas Party. It knows we are still waiting to celebrate Christmas.